bugout
09-19-2009, 12:22 PM
Hi posters! Has anyone taken the leap and went through an IV Infusion of Reclast for OA?
I'm off the chart red on my bone density and have bone degeneration RA OA and am still pretty young. Even young at heart!!
I was so scared, so this time I didn't look up all the side effects beforehand, I sucked it up and went in, and did it. It was like a chemo room, 4 other women all hooked up.
I was given pre op meds, and was quite loopy and that was nice, until I realized I wasn't told to have someone drive me. *ugh*
The infusion went well, I didn't turn into a red lobster from hives, but I did start to itch, and they combat that beforehand with solumedrol and benedryl in the IV. OK so I slept the rest of the infusion. Went home, I was tired, scared but OK.
I woke up at 5:30 in the morning and the bed was shaking like an earthquake it took a bit to realize omg that is me, I'm having the shakes, severe chills, and I couldn't lift my head. That
"you've just had a spinal tap don't lift your head feeling" OMG, and aching all over and well, I had to get up to pee from all the gatorade and the IV bags, etc. I barely could walk. I didn't stop shaking for two hours. Finally got the heating pad under me, hubby got more gatorade, pain medicine which they said to take, and my fever was 102. It's been 102 for two days time now. This morning it was 101. Last night I did get it down to 99 for a bit.
Wow. It's been awful. It is a once a year infusion, so that my bones wills top breaking. I've had two breaks in 6 months time. It's a bad sign. So now I am to take more Citracal every day, and for 4 days Zyrtec for Hives and Pain meds for the bone aching. Allow me a
Waaaaaaa here please?
Well, If you've had an infusion, can you tell me how did it go for you, what do you think of the drug, has your bone density test gone into the yellow or off the red zone and have you really had less breaks?
My head is still hurting this morning and the eye pain, if I move my head to quickly it's very painful. So I've just layed here since Thursday morning when I woke up shaking. Drinking Gatorade, taking all these medicines, and trying to watch my Temp. And of course not post too much coz I do have a fever lol. TIA for any info you have, I know that the Dr's and the Nurses are all raving about this new drug but newer drugs do scare me. I also had chest pain, couldn't take a deep breath. All listed on the symptoms and the Dr said call Monday if I am still feeling this badly. I hope it's gone by tomorrow, I have to take a ten hour drive up and back. I cannot cancel, I will just knit and passenger, and try to not move my head much. Grrrrrrrrrr.
I had hoped not looking up side effects would help me but this time it really didn't. I guess I will stick with what works for me, read them and watch for them, instead of being awakened by a shaking bed trying to figure out HEY who is shaking my bed!! OH THATS ME??? IM SICK???
wow. Side effects can last 3 days to 14 days.
TIA if you have any info, are a nurse, but not cindy a I don't wanna hear from YOU. (oh lol)
Bugged by these side effects!~!!!
I'm off the chart red on my bone density and have bone degeneration RA OA and am still pretty young. Even young at heart!!
I was so scared, so this time I didn't look up all the side effects beforehand, I sucked it up and went in, and did it. It was like a chemo room, 4 other women all hooked up.
I was given pre op meds, and was quite loopy and that was nice, until I realized I wasn't told to have someone drive me. *ugh*
The infusion went well, I didn't turn into a red lobster from hives, but I did start to itch, and they combat that beforehand with solumedrol and benedryl in the IV. OK so I slept the rest of the infusion. Went home, I was tired, scared but OK.
I woke up at 5:30 in the morning and the bed was shaking like an earthquake it took a bit to realize omg that is me, I'm having the shakes, severe chills, and I couldn't lift my head. That
"you've just had a spinal tap don't lift your head feeling" OMG, and aching all over and well, I had to get up to pee from all the gatorade and the IV bags, etc. I barely could walk. I didn't stop shaking for two hours. Finally got the heating pad under me, hubby got more gatorade, pain medicine which they said to take, and my fever was 102. It's been 102 for two days time now. This morning it was 101. Last night I did get it down to 99 for a bit.
Wow. It's been awful. It is a once a year infusion, so that my bones wills top breaking. I've had two breaks in 6 months time. It's a bad sign. So now I am to take more Citracal every day, and for 4 days Zyrtec for Hives and Pain meds for the bone aching. Allow me a
Waaaaaaa here please?
Well, If you've had an infusion, can you tell me how did it go for you, what do you think of the drug, has your bone density test gone into the yellow or off the red zone and have you really had less breaks?
My head is still hurting this morning and the eye pain, if I move my head to quickly it's very painful. So I've just layed here since Thursday morning when I woke up shaking. Drinking Gatorade, taking all these medicines, and trying to watch my Temp. And of course not post too much coz I do have a fever lol. TIA for any info you have, I know that the Dr's and the Nurses are all raving about this new drug but newer drugs do scare me. I also had chest pain, couldn't take a deep breath. All listed on the symptoms and the Dr said call Monday if I am still feeling this badly. I hope it's gone by tomorrow, I have to take a ten hour drive up and back. I cannot cancel, I will just knit and passenger, and try to not move my head much. Grrrrrrrrrr.
I had hoped not looking up side effects would help me but this time it really didn't. I guess I will stick with what works for me, read them and watch for them, instead of being awakened by a shaking bed trying to figure out HEY who is shaking my bed!! OH THATS ME??? IM SICK???
wow. Side effects can last 3 days to 14 days.
TIA if you have any info, are a nurse, but not cindy a I don't wanna hear from YOU. (oh lol)
Bugged by these side effects!~!!!