David, The "Bubble Boy". What we didn't know.

[Lavinia]

http://www.houstonpress.com/1997-04-10/news/bursting-the-bubble/full

VERY interesting story about David, "The Bubble Boy". Very complicated and tragic story.

[openminded]

Thanks for posting that, Lavinia. I followed David's case closely from the time he was born until he died because he was just a little younger than my son.

IIRC, there were always positive yearly updates around the time of his birthday for all those years.

Very interesting (and very sad) to read a different view of David's life from what was given out to the media then.

[FoxySly]

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Thanks for posting a link to the story Lavinia even though it broke my heart reading it :sad:

Sly

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[Lavinia]

I was happy to post this as I have always been naive, particularly when this case was going on and it never dawned on me that an institution devoted to healing people and saving lives might have been so political regarding their programs that they would manipulate public opinion so strongly. Then I think about big pharmacy and know they're all out for the almighty dollar now and if a patient happens to do well with whatever they're pushing at the time, that will just be gravy. I'm going back to the old credo, "trust no one over 30". By then (30) they know how to play the games of manipulation and look more towards the gods of money and personal success as the brass ring. In retrospect, I should have known David's story wasn't as it had been laid out by the hospital and Dr.s.

One positive is that his life did not go in vain. The doctor community really did learn of many new types of infection control and immunology and therapies, through David's case, bless his heart.

[Adalena935]

Lavina, I didn't get that from the link. Maybe it's because I didn't follow this boy's case. My sons were born with bone cancer. They know there's a genetic component and that it's linked to a deficiency in the immune system. My sons had just enough components of their immune system to build on. But they were born lacking much of what's necessary.

It's not medical science's fault or doctor's that children are born with medical problems. When you raise children in hospitals the staffs always move on. Yes, it's not easy and it's a different childhood to be sure. Govt always gives medical science money for research. In the beginning of the article it said that as if it were a fault and it's not.

I was shocked at what medical science doesn't know. They're learning a lot though and have made great strides. In the future they'll be able to avoid many illnesses that plague humankind through genetics.

Thanks for posting the article.

[FoxySly]

I was happy to post this as I have always been naive, particularly when this case was going on and it never dawned on me that an institution devoted to healing people and saving lives might have been so political regarding their programs that they would manipulate public opinion so strongly. Then I think about big pharmacy and know they're all out for the almighty dollar now and if a patient happens to do well with whatever they're pushing at the time, that will just be gravy. I'm going back to the old credo, "trust no one over 30". By then (30) they know how to play the games of manipulation and look more towards the gods of money and personal success as the brass ring. In retrospect, I should have known David's story wasn't as it had been laid out by the hospital and Dr.s.

One positive is that his life did not go in vain. The doctor community really did learn of many new types of infection control and immunology and therapies, through David's case, bless his heart.

Yup, this made me recall a book given to me in 7th grade that I still have (thank you Mr Helms) titled 'Johnny Got His Gun'.

Sly

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